News & Events

2026 RAD Brain Workshop

The RARE Advocate Development (RAD) Brain Workshop is a three-day intensive meeting focused on the development of CNS therapies. This small-group format educational meeting is designed for rare disease patient advocates who are accelerating research in their neurological condition, and have already started funding and engaging directly in research projects, with the aim for all attendees to become more confident in addressing a rare drug development or research-related goal for their community.

This program is a collaborative program delivered by Global Genes, Rare Epilepsy Network (REN) and Mahzi Therapeutics. The event is open to all REN member advocacy groups.

The RAD Brain Workshop 2026 will be held May, 20-22, 2026 in Boston at Alexion, AstraZeneca Rare Disease.

See the agenda and learn more.