{"id":11178,"date":"2023-04-14T21:55:23","date_gmt":"2023-04-14T21:55:23","guid":{"rendered":"https:\/\/epitomestaging.com\/tnc\/?page_id=11178"},"modified":"2024-07-26T17:07:37","modified_gmt":"2024-07-26T17:07:37","slug":"fragile-x-syndrome","status":"publish","type":"page","link":"https:\/\/epitomestaging.com\/tnc\/advocacy-partners\/fragile-x-syndrome\/","title":{"rendered":"Fragile X Syndrome"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;Home 2 Content Pg&#8221; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#bbe4ed&#8221; background_image=&#8221;https:\/\/epitomestaging.com\/tnc\/wp-content\/uploads\/2022\/02\/rsz-tnc-header-engagement-1000&#215;200-1.jpg&#8221; background_size=&#8221;initial&#8221; width_phone=&#8221;auto&#8221; width_last_edited=&#8221;off|desktop&#8221; max_width_last_edited=&#8221;off|desktop&#8221; module_alignment=&#8221;center&#8221; min_height_tablet=&#8221;300px&#8221; min_height_last_edited=&#8221;off|desktop&#8221; height=&#8221;200px&#8221; height_tablet=&#8221;154px&#8221; height_phone=&#8221;100px&#8221; height_last_edited=&#8221;on|phone&#8221; max_height_tablet=&#8221;300px&#8221; max_height_phone=&#8221;300px&#8221; max_height_last_edited=&#8221;off|desktop&#8221; custom_margin=&#8221;0px||0px||false|false&#8221; custom_padding=&#8221;0px||0px||false|false&#8221; top_divider_height_tablet=&#8221;&#8221; top_divider_height_phone=&#8221;50px&#8221; top_divider_height_last_edited=&#8221;on|phone&#8221; bottom_divider_style=&#8221;curve&#8221; bottom_divider_color=&#8221;#FFFFFF&#8221; bottom_divider_height=&#8221;70px&#8221; bottom_divider_arrangement=&#8221;above_content&#8221; bottom_divider_height_tablet=&#8221;70px&#8221; bottom_divider_height_phone=&#8221;50px&#8221; bottom_divider_height_last_edited=&#8221;on|desktop&#8221; background_last_edited=&#8221;on|tablet&#8221; background_image_phone=&#8221;https:\/\/epitomestaging.com\/tnc\/wp-content\/uploads\/2022\/02\/rsz-tnc-mobile-stars.jpg&#8221; background_enable_image_phone=&#8221;on&#8221; parallax_tablet=&#8221;off&#8221; parallax_phone=&#8221;off&#8221; background_size_tablet=&#8221;contain&#8221; background_size_phone=&#8221;initial&#8221; background_position_tablet=&#8221;top_center&#8221; background_position_phone=&#8221;top_right&#8221; background_enable_video_mp4_tablet=&#8221;off&#8221; background_enable_video_mp4_phone=&#8221;off&#8221; module_alignment_tablet=&#8221;right&#8221; module_alignment_phone=&#8221;left&#8221; module_alignment_last_edited=&#8221;off|desktop&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;1_2,1_2&#8243; use_custom_gutter=&#8221;on&#8221; gutter_width=&#8221;1&#8243; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; module_alignment=&#8221;center&#8221; custom_margin=&#8221;0px||||false|false&#8221; custom_padding=&#8221;0px||||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text content_tablet=&#8221;<\/p>\n<h1>Patient Engagement<\/h1>\n<p>&#8221; content_phone=&#8221;<\/p>\n<h1>Patient Engagement<\/h1>\n<p>&#8221; content_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; z_index=&#8221;10&#8243; custom_margin=&#8221;30px||||false|false&#8221; custom_margin_tablet=&#8221;30px||||false|false&#8221; custom_margin_phone=&#8221;|0%|||false|false&#8221; custom_margin_last_edited=&#8221;on|phone&#8221; custom_padding=&#8221;|187px|||false|false&#8221; custom_padding_tablet=&#8221;|427px|||false|false&#8221; custom_padding_phone=&#8221;|0px|||false|false&#8221; custom_padding_last_edited=&#8221;on|desktop&#8221; hover_enabled=&#8221;0&#8243; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<h1>For Patients<\/h1>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; background_enable_color=&#8221;off&#8221; custom_margin=&#8221;20px||21px||false|false&#8221; custom_padding=&#8221;0px||0px||false|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;0px|0px|0|0px|false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;4.20.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Partnerships for Fragile X Syndrome<\/h2>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.20.2&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#ededed&#8221; custom_margin=&#8221;||0px||false|false&#8221; custom_padding=&#8221;40px||2px||false|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;1_4,3_4&#8243; use_custom_gutter=&#8221;on&#8221; gutter_width=&#8221;2&#8243; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;0px|0px|30px|0px|false|false&#8221; border_width_bottom=&#8221;1px&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_4&#8243; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_image src=&#8221;https:\/\/epitomestaging.com\/tnc\/wp-content\/uploads\/2022\/03\/FRAXA-RF-Logo.png&#8221; alt=&#8221;FRAXA Logo&#8221; title_text=&#8221;FRAXA-RF-Logo&#8221; url=&#8221;https:\/\/www.fraxa.org\/&#8221; url_new_window=&#8221;on&#8221; show_bottom_space=&#8221;off&#8221; align=&#8221;center&#8221; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;a637343f-1667-410e-a4b5-1c2a6f3414dd&#8221; max_width=&#8221;100%&#8221; max_width_tablet=&#8221;50%&#8221; max_width_phone=&#8221;80%&#8221; max_width_last_edited=&#8221;on|desktop&#8221; module_alignment=&#8221;center&#8221; custom_margin=&#8221;||||false|false&#8221; module_alignment_tablet=&#8221;left&#8221; module_alignment_phone=&#8221;left&#8221; module_alignment_last_edited=&#8221;on|tablet&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][et_pb_column type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h3 class=\"p1\">FRAXA Research Foundation<\/h3>\n<p class=\"p1\">With the goal of finding a cure for Fragile X, FRAXA is a major contributor to the funding of biomedical research collaborating in these efforts. Equipped with an accomplished scientific advisory board, FRAXA aids in research endeavors first-hand by running scientific meetings, advising pharmaceutical companies, and providing education on college campuses, community settings, and international conferences. Outside of research, FRAXA also provides a support and resources for families.<\/p>\n<p class=\"learn-more\"><a href=\"https:\/\/www.fraxa.org\/\" target=\"_blank\" rel=\"noopener\">LEARN MORE &gt;<\/a><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=&#8221;1_4,3_4&#8243; use_custom_gutter=&#8221;on&#8221; gutter_width=&#8221;2&#8243; _builder_version=&#8221;4.20.2&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;30px|0px|159px|0px|false|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_4&#8243; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_image src=&#8221;https:\/\/epitomestaging.com\/tnc\/wp-content\/uploads\/2022\/03\/NFXF-logo.png&#8221; alt=&#8221;NFXF Logo&#8221; title_text=&#8221;NFXF logo&#8221; url=&#8221;https:\/\/fragilex.org\/&#8221; url_new_window=&#8221;on&#8221; show_bottom_space=&#8221;off&#8221; align=&#8221;center&#8221; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;a637343f-1667-410e-a4b5-1c2a6f3414dd&#8221; max_width=&#8221;80%&#8221; max_width_tablet=&#8221;32%&#8221; max_width_phone=&#8221;64%&#8221; max_width_last_edited=&#8221;on|phone&#8221; module_alignment=&#8221;center&#8221; custom_margin=&#8221;||||false|false&#8221; module_alignment_tablet=&#8221;left&#8221; module_alignment_phone=&#8221;left&#8221; module_alignment_last_edited=&#8221;on|desktop&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][et_pb_column type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px|||||&#8221; custom_padding=&#8221;||2px|||&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h3 class=\"p1\">National Fragile X Foundation<\/h3>\n<p class=\"p1\">The National Fragile X Foundation is aims to provide advocacy, education, research, and treatment for individuals with Fragile X. These goals are accomplished through a focus on community, where they engage in a vast number of educative and fundraising events, conferences, support and networking services, and research endeavors such as repository hosting and consortia promotion.<span class=\"Apple-converted-space\">\u00a0<\/span><\/p>\n<p class=\"learn-more\"><a href=\"https:\/\/fragilex.org\/\" target=\"_blank\" rel=\"noopener\">LEARN MORE &gt;<\/a><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; module_id=&#8221;mda&#8221; _builder_version=&#8221;4.19.2&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#ededed&#8221; custom_margin=&#8221;||||false|false&#8221; custom_padding=&#8221;29px||29px||true|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.20.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#bbe4ed&#8221; custom_margin=&#8221;0px|auto||auto|false|false&#8221; custom_padding=&#8221;20px|30px|0px|30px|false|true&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.19.2&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.20.4&#8243; _module_preset=&#8221;default&#8221; text_letter_spacing=&#8221;6px&#8221; custom_margin=&#8221;||16px|||&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><strong>CLINICAL TRIAL<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.19.2&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.20.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px||0px||false|false&#8221; custom_padding=&#8221;0px||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p class=\"trial\"><a href=\"https:\/\/www.childrenshospital.org\/programs\/fragile-x-program\" target=\"_blank\" rel=\"noopener\">Learn More &gt;<\/a><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;4.20.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#bbe4ed&#8221; custom_margin=&#8221;0px|auto|10px|auto|false|false&#8221; custom_padding=&#8221;0px|30px|30px|30px|false|true&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.19.2&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.20.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;||-2px|||&#8221; custom_padding=&#8221;||||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h3>Clinical Study of Cannabidiol in Children and Adolescents With Fragile X Syndrome (RECONNECT)<\/h3>\n<p>PI: Lisa Prock, MD, MPH\u00a0 |\u00a0 Clinical Drug Trial \u2014 <a href=\"https:\/\/clinicaltrials.gov\/ct2\/show\/NCT04712812 \"><\/a><a href=\"https:\/\/clinicaltrials.gov\/ct2\/show\/NCT04977986 \">NCT04977986 &gt;<\/a>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>For PatientsPartnerships for Fragile X SyndromeFRAXA Research Foundation With the goal of finding a cure for Fragile X, FRAXA is a major contributor to the funding of biomedical research collaborating in these efforts. Equipped with an accomplished scientific advisory board, FRAXA aids in research endeavors first-hand by running scientific meetings, advising pharmaceutical companies, and providing [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":0,"parent":8782,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"class_list":["post-11178","page","type-page","status-publish","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/pages\/11178","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/comments?post=11178"}],"version-history":[{"count":4,"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/pages\/11178\/revisions"}],"predecessor-version":[{"id":12198,"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/pages\/11178\/revisions\/12198"}],"up":[{"embeddable":true,"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/pages\/8782"}],"wp:attachment":[{"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/media?parent=11178"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}