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[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.16″ _module_preset=”default” background_enable_color=”off” custom_margin=”20px||21px||false|false” custom_padding=”0px||0px||false|false” locked=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.16″ _module_preset=”default” custom_padding=”0px|0px|0|0px|false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ _module_preset=”default” custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.16″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n
[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ module_id=”phelan” _builder_version=”4.20.2″ _module_preset=”default” background_color=”#ededed” custom_margin=”||||false|false” custom_padding=”40px||30px||false|false” locked=”off” global_colors_info=”{}”][et_pb_row column_structure=”1_4,3_4″ use_custom_gutter=”on” gutter_width=”2″ _builder_version=”4.20.2″ _module_preset=”default” custom_padding=”0px|0px|3px|0px|false|false” locked=”off” global_colors_info=”{}”][et_pb_column type=”1_4″ _builder_version=”4.16″ _module_preset=”default” custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_image src=”https:\/\/epitomestaging.com\/tnc\/wp-content\/uploads\/2022\/02\/logo-pms-581×791-1.png” alt=”PMSF Logo” title_text=”logo-pms-581×791″ url=”https:\/\/pmsf.org\/” url_new_window=”on” _builder_version=”4.16″ _module_preset=”ff2f9aa9-59b7-4349-bf8b-5ca832983f42″ max_width=”50%” max_width_tablet=”25%” max_width_phone=”50%” max_width_last_edited=”on|desktop” module_alignment=”center” module_alignment_tablet=”left” module_alignment_phone=”left” module_alignment_last_edited=”on|desktop” global_colors_info=”{}”][\/et_pb_image][\/et_pb_column][et_pb_column type=”3_4″ _builder_version=”4.16″ _module_preset=”default” custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.16″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n
The PMS Foundation was created with the goal of improving the quality of life of people affected by PMS worldwide by providing family support, accelerating research, and raising awareness. They accomplish this mission through collaborative programming and fundraising efforts. <\/p>\n
LEARN MORE ><\/a><\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,3_4″ use_custom_gutter=”on” gutter_width=”2″ _builder_version=”4.20.2″ _module_preset=”default” custom_padding=”41px|0px|3px|0px|false|false” locked=”off” global_colors_info=”{}”][et_pb_column type=”1_4″ _builder_version=”4.16″ _module_preset=”default” custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_image src=”https:\/\/epitomestaging.com\/tnc\/wp-content\/uploads\/2023\/05\/logo-CureSHANK.png” alt=”PMSF Logo” title_text=”logo-CureSHANK” url=”https:\/\/www.cureshank.org\/” url_new_window=”on” _builder_version=”4.21.0″ _module_preset=”ff2f9aa9-59b7-4349-bf8b-5ca832983f42″ max_width=”70%” max_width_tablet=”35%” max_width_phone=”65%” max_width_last_edited=”on|desktop” module_alignment=”center” module_alignment_tablet=”left” module_alignment_phone=”left” module_alignment_last_edited=”on|desktop” global_colors_info=”{}”][\/et_pb_image][\/et_pb_column][et_pb_column type=”3_4″ _builder_version=”4.16″ _module_preset=”default” custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.21.0″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n CureSHANK funds projects that accelerate treatments for Phelan-McDermid syndrome and SHANK-related disorders. Its purpose is to identify and support projects that overcome critical barriers to successful drug development and to coordinate scientific efforts to improve efficiency and speed in the field.<\/p>\n LEARN MORE ><\/a><\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ module_id=”mda” _builder_version=”4.19.2″ _module_preset=”default” background_color=”#ededed” custom_margin=”||||false|false” custom_padding=”29px||29px||true|false” locked=”off” global_colors_info=”{}”][et_pb_row column_structure=”1_2,1_2″ _builder_version=”4.20.4″ _module_preset=”default” background_color=”#bbe4ed” custom_margin=”0px|auto||auto|false|false” custom_padding=”20px|30px|0px|30px|false|true” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.2″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.20.4″ _module_preset=”default” text_letter_spacing=”6px” custom_margin=”||16px|||” global_colors_info=”{}”]<\/p>\n CLINICAL TRIAL<\/strong><\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.19.2″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.20.4″ _module_preset=”default” custom_margin=”0px||0px||false|false” custom_padding=”0px||0px||false|false” global_colors_info=”{}”]<\/p>\n Learn More ><\/a><\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.20.4″ _module_preset=”default” background_color=”#bbe4ed” custom_margin=”0px|auto|10px|auto|false|false” custom_padding=”0px|30px|30px|30px|false|true” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.19.2″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.20.4″ _module_preset=”default” link_text_color=”#0C71C3″ custom_margin=”||-2px|||” custom_padding=”||||false|false” global_colors_info=”{}” link_text_color__hover_enabled=”on|hover” link_text_color__hover=”#FFFFFF”]<\/p>\n PI: Mustafa Sahin, MD, PhD\u00a0 |\u00a0 Natural History Study \u2014 NCT02461420 ><\/a> [\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":" For PatientsPartnership for Phelan-McDermid Syndrome (PMS)Phelan-McDermid Syndrome Foundation The PMS Foundation was created with the goal of improving the quality of life of people affected by PMS worldwide by providing family support, accelerating research, and raising awareness. They accomplish this mission through collaborative programming and fundraising efforts. LEARN MORE >CureSHANK CureSHANK funds projects that accelerate […]<\/p>\n","protected":false},"author":3,"featured_media":0,"parent":8782,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"class_list":["post-11193","page","type-page","status-publish","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/pages\/11193","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/comments?post=11193"}],"version-history":[{"count":7,"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/pages\/11193\/revisions"}],"predecessor-version":[{"id":12203,"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/pages\/11193\/revisions\/12203"}],"up":[{"embeddable":true,"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/pages\/8782"}],"wp:attachment":[{"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/media?parent=11193"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}CureSHANK<\/h3>\n
Mapping the Genotype, Phenotype, and Natural History of Phelan-McDermid Syndrome<\/h3>\n
Patient Advocacy Group Partner: Phelan McDermid Syndrome Foundation<\/a><\/p>\n