[et_pb_section fb_built=”1″ admin_label=”Home 2 Content Pg” _builder_version=”4.16″ _module_preset=”default” background_color=”#bbe4ed” background_image=”https:\/\/epitomestaging.com\/tnc\/wp-content\/uploads\/2022\/02\/rsz-tnc-header-engagement-1000×200-1.jpg” background_size=”initial” width_phone=”auto” width_last_edited=”off|desktop” max_width_last_edited=”off|desktop” module_alignment=”center” min_height_tablet=”300px” min_height_last_edited=”off|desktop” height=”200px” height_tablet=”154px” height_phone=”100px” height_last_edited=”on|phone” max_height_tablet=”300px” max_height_phone=”300px” max_height_last_edited=”off|desktop” custom_margin=”0px||0px||false|false” custom_padding=”0px||0px||false|false” top_divider_height_tablet=”” top_divider_height_phone=”50px” top_divider_height_last_edited=”on|phone” bottom_divider_style=”curve” bottom_divider_color=”#FFFFFF” bottom_divider_height=”70px” bottom_divider_arrangement=”above_content” bottom_divider_height_tablet=”70px” bottom_divider_height_phone=”50px” bottom_divider_height_last_edited=”on|desktop” background_last_edited=”on|tablet” background_image_phone=”https:\/\/epitomestaging.com\/tnc\/wp-content\/uploads\/2022\/02\/rsz-tnc-mobile-stars.jpg” background_enable_image_phone=”on” parallax_tablet=”off” parallax_phone=”off” background_size_tablet=”contain” background_size_phone=”initial” background_position_tablet=”top_center” background_position_phone=”top_right” background_enable_video_mp4_tablet=”off” background_enable_video_mp4_phone=”off” module_alignment_tablet=”right” module_alignment_phone=”left” module_alignment_last_edited=”off|desktop” locked=”off” global_colors_info=”{}”][et_pb_row column_structure=”1_2,1_2″ use_custom_gutter=”on” gutter_width=”1″ _builder_version=”4.16″ _module_preset=”default” module_alignment=”center” custom_margin=”0px||||false|false” custom_padding=”0px||||false|false” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.16″ _module_preset=”default” global_colors_info=”{}”][et_pb_text content_tablet=”<\/p>\n
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[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.16″ _module_preset=”default” background_enable_color=”off” custom_margin=”20px||21px||false|false” custom_padding=”0px||0px||false|false” locked=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.16″ _module_preset=”default” custom_padding=”0px|0px|0|0px|false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ _module_preset=”default” custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.20.4″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n
[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ module_id=”rett” _builder_version=”4.20.2″ _module_preset=”default” background_color=”#ededed” custom_margin=”||||false|false” custom_padding=”40px||30px||false|false” locked=”off” global_colors_info=”{}”][et_pb_row column_structure=”1_4,3_4″ use_custom_gutter=”on” gutter_width=”2″ _builder_version=”4.16″ _module_preset=”default” custom_padding=”0px|0px|30px|0px|false|false” border_width_bottom=”1px” locked=”off” global_colors_info=”{}”][et_pb_column type=”1_4″ _builder_version=”4.16″ _module_preset=”default” custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_image src=”https:\/\/epitomestaging.com\/tnc\/wp-content\/uploads\/2022\/02\/logo-srst-403×150-1.jpg” alt=”RSRT Logo” title_text=”logo-srst-403×150″ url=”https:\/\/reverserett.org\/” url_new_window=”on” _builder_version=”4.16″ _module_preset=”0939096a-82b1-4609-abc2-fc6325723fb4″ max_width=”75%” max_width_tablet=”45%” max_width_phone=”65%” max_width_last_edited=”on|phone” module_alignment=”center” module_alignment_tablet=”left” module_alignment_phone=”left” module_alignment_last_edited=”on|desktop” global_colors_info=”{}”][\/et_pb_image][\/et_pb_column][et_pb_column type=”3_4″ _builder_version=”4.16″ _module_preset=”default” custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.16″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n
The Rett Syndrome Research Trust is a nonprofit organization solely focused on development of a cure for Rett syndrome. Their current focus is on the implementation of six genetic-based strategies and the funding of research worldwide to achieve this goal.<\/p>\n
LEARN MORE ><\/a><\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,3_4″ use_custom_gutter=”on” gutter_width=”2″ _builder_version=”4.16″ _module_preset=”default” custom_padding=”40px|0px|30px|0px|false|false” border_width_bottom=”1px” locked=”off” global_colors_info=”{}”][et_pb_column type=”1_4″ _builder_version=”4.16″ _module_preset=”default” custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_image src=”https:\/\/epitomestaging.com\/tnc\/wp-content\/uploads\/2022\/02\/logo-irsf-400×184-1.png” alt=”IRSF Logo” title_text=”logo-irsf-400×184″ url=”https:\/\/www.rettsyndrome.org\/” url_new_window=”on” _builder_version=”4.16″ _module_preset=”0939096a-82b1-4609-abc2-fc6325723fb4″ max_width=”75%” max_width_tablet=”45%” max_width_phone=”65%” max_width_last_edited=”on|phone” module_alignment=”center” module_alignment_tablet=”left” module_alignment_phone=”left” module_alignment_last_edited=”on|desktop” global_colors_info=”{}”][\/et_pb_image][\/et_pb_column][et_pb_column type=”3_4″ _builder_version=”4.16″ _module_preset=”default” custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.16″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n The International Rett Syndrome Foundation is a leader in the acceleration of research to treat and cure Rett syndrome. Having supported almost 40 years of progress, their foundation has impacted the Rett Syndrome population tremendously through funding that has led to, but not limited to, the discovery of the gene that causes Rett syndrome, the first gene therapy research in Rett syndrome, and the development of the first clinical trial for Rett syndrome, which was conducted at Boston Children\u2019s Hospital.<\/p>\n LEARN MORE ><\/a><\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,3_4″ use_custom_gutter=”on” gutter_width=”2″ _builder_version=”4.20.2″ _module_preset=”default” custom_padding=”40px|0px||0px|false|false” locked=”off” global_colors_info=”{}”][et_pb_column type=”1_4″ _builder_version=”4.16″ _module_preset=”default” custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_image src=”https:\/\/epitomestaging.com\/tnc\/wp-content\/uploads\/2022\/02\/logo-rsa-500×143-1.png” alt=”RSA Logo” title_text=”logo-rsa-500×143″ url=”https:\/\/rsangels.org\/” url_new_window=”on” _builder_version=”4.16″ _module_preset=”0939096a-82b1-4609-abc2-fc6325723fb4″ max_width=”75%” max_width_tablet=”45%” max_width_phone=”65%” max_width_last_edited=”on|phone” module_alignment=”center” module_alignment_tablet=”left” module_alignment_phone=”left” module_alignment_last_edited=”on|desktop” global_colors_info=”{}”][\/et_pb_image][\/et_pb_column][et_pb_column type=”3_4″ _builder_version=”4.16″ _module_preset=”default” custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.16″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n Formerly the Rett Syndrome Association of Massachusetts (RSAM), this New England-based organization provides support to Rett syndrome families by providing services, resources, awareness, and fundraising for the advancement of Rett syndrome research and improving the lives of those impacted by Rett syndrome.<\/p>\n LEARN MORE ><\/a><\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ module_id=”mda” _builder_version=”4.19.2″ _module_preset=”default” background_color=”#ededed” custom_margin=”||||false|false” custom_padding=”29px||29px||true|false” locked=”off” global_colors_info=”{}”][et_pb_row column_structure=”1_2,1_2″ _builder_version=”4.20.4″ _module_preset=”default” background_color=”#bbe4ed” custom_margin=”0px|auto||auto|false|false” custom_padding=”20px|30px|0px|30px|false|true” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.2″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.20.4″ _module_preset=”default” text_letter_spacing=”6px” custom_margin=”||16px|||” global_colors_info=”{}”]<\/p>\n CLINICAL TRIAL<\/strong><\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.19.2″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.20.4″ _module_preset=”default” custom_margin=”0px||0px||false|false” custom_padding=”0px||0px||false|false” global_colors_info=”{}”]<\/p>\n Learn More ><\/a><\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.20.4″ _module_preset=”default” background_color=”#bbe4ed” custom_margin=”0px|auto|40px|auto|false|false” custom_padding=”0px|30px|30px|30px|false|true” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.19.2″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.20.4″ _module_preset=”default” link_text_color=”#0C71C3″ custom_margin=”||-2px|||” custom_padding=”||||false|false” global_colors_info=”{}” link_text_color__hover_enabled=”on|hover” link_text_color__hover=”#FFFFFF”]<\/p>\n PI: David Lieberman, MD, PhD\u00a0 |\u00a0 Clinical Drug Trial \u2014 NCT04988867 ><\/a> CLINICAL TRIAL<\/strong><\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.19.2″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.20.4″ _module_preset=”default” custom_margin=”0px||0px||false|false” custom_padding=”0px||0px||false|false” global_colors_info=”{}”]<\/p>\n Learn More ><\/a><\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.20.4″ _module_preset=”default” background_color=”#bbe4ed” custom_margin=”0px|auto|10px|auto|false|false” custom_padding=”0px|30px|30px|30px|false|true” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.19.2″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.20.4″ _module_preset=”default” link_text_color=”#0C71C3″ custom_margin=”||-2px|||” custom_padding=”||||false|false” global_colors_info=”{}” link_text_color__hover_enabled=”on|hover” link_text_color__hover=”#FFFFFF”]<\/p>\n PI: David Lieberman, MD, PhD\u00a0 |\u00a0 Observational Device Trial \u2014 NCT04514549 ><\/a> For PatientsPartnerships for Rett SyndromeRett Syndrome Research Trust The Rett Syndrome Research Trust is a nonprofit organization solely focused on development of a cure for Rett syndrome. Their current focus is on the implementation of six genetic-based strategies and the funding of research worldwide to achieve this goal. LEARN MORE >International Rett Syndrome Foundation The […]<\/p>\n","protected":false},"author":3,"featured_media":0,"parent":8782,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"class_list":["post-11200","page","type-page","status-publish","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/pages\/11200","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/comments?post=11200"}],"version-history":[{"count":5,"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/pages\/11200\/revisions"}],"predecessor-version":[{"id":12206,"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/pages\/11200\/revisions\/12206"}],"up":[{"embeddable":true,"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/pages\/8782"}],"wp:attachment":[{"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/media?parent=11200"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}International Rett Syndrome Foundation<\/h3>\n
Rett Syndrome Angels<\/h3>\n
An Open-Label Study of Trofinetide for the Treatment of Girls Two to Five Years of Age Who Have Rett Syndrome (DAFFODIL\u2122)<\/h3>\n
\nPatient Advocacy Group Partner: International Rett Syndrome Foundation<\/a> (IRSF)[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_2,1_2″ _builder_version=”4.20.4″ _module_preset=”default” background_color=”#bbe4ed” custom_margin=”0px|auto||auto|false|false” custom_padding=”20px|30px|0px|30px|false|true” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.19.2″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.20.4″ _module_preset=”default” text_letter_spacing=”6px” custom_margin=”||16px|||” global_colors_info=”{}”]<\/p>\nAssessing Emerald and MC10 Biostamp nPOINT Biosensor for Rett Syndrome<\/h3>\n
\nPatient Advocacy Group Partner: Rett Syndrome Research Trust<\/a>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"