{"id":11206,"date":"2023-04-14T22:02:29","date_gmt":"2023-04-14T22:02:29","guid":{"rendered":"https:\/\/epitomestaging.com\/tnc\/?page_id=11206"},"modified":"2024-07-26T17:13:03","modified_gmt":"2024-07-26T17:13:03","slug":"sturge-weber-syndrome","status":"publish","type":"page","link":"https:\/\/epitomestaging.com\/tnc\/advocacy-partners\/sturge-weber-syndrome\/","title":{"rendered":"Sturge Weber Syndrome"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;Home 2 Content Pg&#8221; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#bbe4ed&#8221; background_image=&#8221;https:\/\/epitomestaging.com\/tnc\/wp-content\/uploads\/2022\/02\/rsz-tnc-header-engagement-1000&#215;200-1.jpg&#8221; background_size=&#8221;initial&#8221; width_phone=&#8221;auto&#8221; width_last_edited=&#8221;off|desktop&#8221; max_width_last_edited=&#8221;off|desktop&#8221; module_alignment=&#8221;center&#8221; min_height_tablet=&#8221;300px&#8221; min_height_last_edited=&#8221;off|desktop&#8221; height=&#8221;200px&#8221; height_tablet=&#8221;154px&#8221; height_phone=&#8221;100px&#8221; height_last_edited=&#8221;on|phone&#8221; max_height_tablet=&#8221;300px&#8221; max_height_phone=&#8221;300px&#8221; max_height_last_edited=&#8221;off|desktop&#8221; custom_margin=&#8221;0px||0px||false|false&#8221; custom_padding=&#8221;0px||0px||false|false&#8221; top_divider_height_tablet=&#8221;&#8221; top_divider_height_phone=&#8221;50px&#8221; top_divider_height_last_edited=&#8221;on|phone&#8221; bottom_divider_style=&#8221;curve&#8221; bottom_divider_color=&#8221;#FFFFFF&#8221; bottom_divider_height=&#8221;70px&#8221; bottom_divider_arrangement=&#8221;above_content&#8221; bottom_divider_height_tablet=&#8221;70px&#8221; bottom_divider_height_phone=&#8221;50px&#8221; bottom_divider_height_last_edited=&#8221;on|desktop&#8221; background_last_edited=&#8221;on|tablet&#8221; background_image_phone=&#8221;https:\/\/epitomestaging.com\/tnc\/wp-content\/uploads\/2022\/02\/rsz-tnc-mobile-stars.jpg&#8221; background_enable_image_phone=&#8221;on&#8221; parallax_tablet=&#8221;off&#8221; parallax_phone=&#8221;off&#8221; background_size_tablet=&#8221;contain&#8221; background_size_phone=&#8221;initial&#8221; background_position_tablet=&#8221;top_center&#8221; background_position_phone=&#8221;top_right&#8221; background_enable_video_mp4_tablet=&#8221;off&#8221; background_enable_video_mp4_phone=&#8221;off&#8221; module_alignment_tablet=&#8221;right&#8221; module_alignment_phone=&#8221;left&#8221; module_alignment_last_edited=&#8221;off|desktop&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;1_2,1_2&#8243; use_custom_gutter=&#8221;on&#8221; gutter_width=&#8221;1&#8243; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; module_alignment=&#8221;center&#8221; custom_margin=&#8221;0px||||false|false&#8221; custom_padding=&#8221;0px||||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text content_tablet=&#8221;<\/p>\n<h1>Patient Engagement<\/h1>\n<p>&#8221; content_phone=&#8221;<\/p>\n<h1>Patient Engagement<\/h1>\n<p>&#8221; content_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; z_index=&#8221;10&#8243; custom_margin=&#8221;30px||||false|false&#8221; custom_margin_tablet=&#8221;30px||||false|false&#8221; custom_margin_phone=&#8221;|0%|||false|false&#8221; custom_margin_last_edited=&#8221;on|phone&#8221; custom_padding=&#8221;|187px|||false|false&#8221; custom_padding_tablet=&#8221;|427px|||false|false&#8221; custom_padding_phone=&#8221;|0px|||false|false&#8221; custom_padding_last_edited=&#8221;on|desktop&#8221; hover_enabled=&#8221;0&#8243; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<h1>For Patients<\/h1>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; background_enable_color=&#8221;off&#8221; custom_margin=&#8221;20px||21px||false|false&#8221; custom_padding=&#8221;0px||0px||false|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;0px|0px|0|0px|false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;4.20.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Partnership for <span>Sturge Weber Syndrome<\/span><\/h2>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; module_id=&#8221;sws&#8221; _builder_version=&#8221;4.20.2&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#ededed&#8221; custom_margin=&#8221;||||false|false&#8221; custom_padding=&#8221;40px||28px||false|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;1_4,3_4&#8243; use_custom_gutter=&#8221;on&#8221; gutter_width=&#8221;2&#8243; _builder_version=&#8221;4.20.2&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;0px|0px|30px|0px|false|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_4&#8243; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_image src=&#8221;https:\/\/epitomestaging.com\/tnc\/wp-content\/uploads\/2022\/02\/logo-sturge-weber-200&#215;181-1.png&#8221; alt=&#8221;SWF Logo&#8221; title_text=&#8221;logo-sturge-weber-200&#215;181&#8243; url=&#8221;https:\/\/sturge-weber.org\/who-we-are\/staff.html&#8221; url_new_window=&#8221;on&#8221; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;7391c0ba-a6cc-45a4-93b8-9e613f1dae30&#8243; max_width=&#8221;50%&#8221; max_width_tablet=&#8221;25%&#8221; max_width_phone=&#8221;50%&#8221; max_width_last_edited=&#8221;on|desktop&#8221; module_alignment=&#8221;center&#8221; module_alignment_tablet=&#8221;left&#8221; module_alignment_phone=&#8221;left&#8221; module_alignment_last_edited=&#8221;on|desktop&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][et_pb_column type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h3>Sturge-Weber Foundation<\/h3>\n<p>The Sturge-Weber Foundation provides support for navigating life with Sturge-Weber syndrome and related birthmark conditions.<\/p>\n<p class=\"learn-more\"><a href=\"https:\/\/sturge-weber.org\/who-we-are\/staff.html\" target=\"_blank\" rel=\"noopener\">LEARN MORE &gt;<\/a><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; module_id=&#8221;mda&#8221; _builder_version=&#8221;4.19.2&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#ededed&#8221; custom_margin=&#8221;||||false|false&#8221; custom_padding=&#8221;29px||29px||true|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.20.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#bbe4ed&#8221; custom_margin=&#8221;0px|auto||auto|false|false&#8221; custom_padding=&#8221;20px|30px|0px|30px|false|true&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.19.2&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.20.4&#8243; _module_preset=&#8221;default&#8221; text_letter_spacing=&#8221;6px&#8221; custom_margin=&#8221;||16px|||&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><strong>CLINICAL TRIAL<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.19.2&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.20.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px||0px||false|false&#8221; custom_padding=&#8221;0px||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p class=\"trial\"><a href=\"https:\/\/www.childrenshospital.org\/conditions\/sturge-weber-syndrome\" target=\"_blank\" rel=\"noopener\">Learn More &gt;<\/a><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;4.20.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#bbe4ed&#8221; custom_margin=&#8221;0px|auto|10px|auto|false|false&#8221; custom_padding=&#8221;0px|30px|30px|30px|false|true&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.19.2&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.20.4&#8243; _module_preset=&#8221;default&#8221; link_text_color=&#8221;#0C71C3&#8243; custom_margin=&#8221;||-2px|||&#8221; custom_padding=&#8221;||||false|false&#8221; global_colors_info=&#8221;{}&#8221; link_text_color__hover_enabled=&#8221;on|hover&#8221; link_text_color__hover=&#8221;#FFFFFF&#8221;]<\/p>\n<h3>Longitudinal Studies to Identify Biomarkers for Sturge-Weber Syndrome<\/h3>\n<p>PI: Anna Pinto, MD, PhD\u00a0 |\u00a0 Natural History Study \u2014 <a href=\"https:\/\/clinicaltrials.gov\/ct2\/show\/NCT04717427\" target=\"_blank\" rel=\"noopener\"> NCT04717427 &gt;<\/a><br \/>\nPatient Advocacy Group Partner: <a href=\"https:\/\/sturge-weber.org\/\" target=\"_blank\" rel=\"noopener\">Sturge-Weber Foundation<\/a>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>For PatientsPartnership for Sturge Weber SyndromeSturge-Weber Foundation The Sturge-Weber Foundation provides support for navigating life with Sturge-Weber syndrome and related birthmark conditions. LEARN MORE &gt;CLINICAL TRIALLearn More &gt;Longitudinal Studies to Identify Biomarkers for Sturge-Weber Syndrome PI: Anna Pinto, MD, PhD\u00a0 |\u00a0 Natural History Study \u2014 NCT04717427 &gt; Patient Advocacy Group Partner: Sturge-Weber Foundation<\/p>\n","protected":false},"author":3,"featured_media":0,"parent":8782,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"class_list":["post-11206","page","type-page","status-publish","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/pages\/11206","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/comments?post=11206"}],"version-history":[{"count":4,"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/pages\/11206\/revisions"}],"predecessor-version":[{"id":12208,"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/pages\/11206\/revisions\/12208"}],"up":[{"embeddable":true,"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/pages\/8782"}],"wp:attachment":[{"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/media?parent=11206"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}