{"id":11215,"date":"2023-04-14T22:04:50","date_gmt":"2023-04-14T22:04:50","guid":{"rendered":"https:\/\/epitomestaging.com\/tnc\/?page_id=11215"},"modified":"2024-07-26T17:15:10","modified_gmt":"2024-07-26T17:15:10","slug":"tuberous-sclerosis-complex","status":"publish","type":"page","link":"https:\/\/epitomestaging.com\/tnc\/advocacy-partners\/tuberous-sclerosis-complex\/","title":{"rendered":"Tuberous Sclerosis Complex"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;Home 2 Content Pg&#8221; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#bbe4ed&#8221; background_image=&#8221;https:\/\/epitomestaging.com\/tnc\/wp-content\/uploads\/2022\/02\/rsz-tnc-header-engagement-1000&#215;200-1.jpg&#8221; background_size=&#8221;initial&#8221; width_phone=&#8221;auto&#8221; width_last_edited=&#8221;off|desktop&#8221; max_width_last_edited=&#8221;off|desktop&#8221; module_alignment=&#8221;center&#8221; min_height_tablet=&#8221;300px&#8221; min_height_last_edited=&#8221;off|desktop&#8221; height=&#8221;200px&#8221; height_tablet=&#8221;154px&#8221; height_phone=&#8221;100px&#8221; height_last_edited=&#8221;on|phone&#8221; max_height_tablet=&#8221;300px&#8221; max_height_phone=&#8221;300px&#8221; max_height_last_edited=&#8221;off|desktop&#8221; custom_margin=&#8221;0px||0px||false|false&#8221; custom_padding=&#8221;0px||0px||false|false&#8221; top_divider_height_tablet=&#8221;&#8221; top_divider_height_phone=&#8221;50px&#8221; top_divider_height_last_edited=&#8221;on|phone&#8221; bottom_divider_style=&#8221;curve&#8221; bottom_divider_color=&#8221;#FFFFFF&#8221; bottom_divider_height=&#8221;70px&#8221; bottom_divider_arrangement=&#8221;above_content&#8221; bottom_divider_height_tablet=&#8221;70px&#8221; bottom_divider_height_phone=&#8221;50px&#8221; bottom_divider_height_last_edited=&#8221;on|desktop&#8221; background_last_edited=&#8221;on|tablet&#8221; background_image_phone=&#8221;https:\/\/epitomestaging.com\/tnc\/wp-content\/uploads\/2022\/02\/rsz-tnc-mobile-stars.jpg&#8221; background_enable_image_phone=&#8221;on&#8221; parallax_tablet=&#8221;off&#8221; parallax_phone=&#8221;off&#8221; background_size_tablet=&#8221;contain&#8221; background_size_phone=&#8221;initial&#8221; background_position_tablet=&#8221;top_center&#8221; background_position_phone=&#8221;top_right&#8221; background_enable_video_mp4_tablet=&#8221;off&#8221; background_enable_video_mp4_phone=&#8221;off&#8221; module_alignment_tablet=&#8221;right&#8221; module_alignment_phone=&#8221;left&#8221; module_alignment_last_edited=&#8221;off|desktop&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;1_2,1_2&#8243; use_custom_gutter=&#8221;on&#8221; gutter_width=&#8221;1&#8243; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; module_alignment=&#8221;center&#8221; custom_margin=&#8221;0px||||false|false&#8221; custom_padding=&#8221;0px||||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text content_tablet=&#8221;<\/p>\n<h1>Patient Engagement<\/h1>\n<p>&#8221; content_phone=&#8221;<\/p>\n<h1>Patient Engagement<\/h1>\n<p>&#8221; content_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; z_index=&#8221;10&#8243; custom_margin=&#8221;30px||||false|false&#8221; custom_margin_tablet=&#8221;30px||||false|false&#8221; custom_margin_phone=&#8221;|0%|||false|false&#8221; custom_margin_last_edited=&#8221;on|phone&#8221; custom_padding=&#8221;|187px|||false|false&#8221; custom_padding_tablet=&#8221;|427px|||false|false&#8221; custom_padding_phone=&#8221;|0px|||false|false&#8221; custom_padding_last_edited=&#8221;on|desktop&#8221; hover_enabled=&#8221;0&#8243; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<h1>For Patients<\/h1>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; background_enable_color=&#8221;off&#8221; custom_margin=&#8221;20px||21px||false|false&#8221; custom_padding=&#8221;0px||0px||false|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;0px|0px|0|0px|false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;4.20.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Partnership for Tuberous Sclerosis Complex (TSC)<\/h2>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; module_id=&#8221;tsc&#8221; _builder_version=&#8221;4.20.2&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#ededed&#8221; custom_margin=&#8221;||||false|false&#8221; custom_padding=&#8221;40px||40px||false|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;1_4,3_4&#8243; use_custom_gutter=&#8221;on&#8221; gutter_width=&#8221;2&#8243; _builder_version=&#8221;4.20.2&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;0px|0px|9px|0px|false|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_4&#8243; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_image src=&#8221;https:\/\/epitomestaging.com\/tnc\/wp-content\/uploads\/2022\/02\/logo-tsa-400&#215;371-1.png&#8221; alt=&#8221;TSC Alliance Logo&#8221; title_text=&#8221;logo-tsa-400&#215;371&#8243; url=&#8221;https:\/\/www.tscalliance.org\/&#8221; url_new_window=&#8221;on&#8221; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;2aac2a59-5def-488a-9341-6b77093333c2&#8243; max_width=&#8221;50%&#8221; max_width_tablet=&#8221;25%&#8221; max_width_phone=&#8221;50%&#8221; max_width_last_edited=&#8221;on|desktop&#8221; module_alignment=&#8221;center&#8221; module_alignment_tablet=&#8221;left&#8221; module_alignment_phone=&#8221;left&#8221; module_alignment_last_edited=&#8221;on|desktop&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][et_pb_column type=&#8221;3_4&#8243; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h3>TSC Alliance<\/h3>\n<p>The TSC Alliance aims to find a cure while also improving the quality of life for those affected by Tuberous Sclerosis Complex. Their vision is delivered through support of accelerating research, improving access and quality of care, providing support to families, educating, and strengthening the TSC community. <\/p>\n<p class=\"learn-more\"><a href=\"https:\/\/www.tscalliance.org\/\" target=\"_blank\" rel=\"noopener\">LEARN MORE &gt;<\/a><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; module_id=&#8221;mda&#8221; _builder_version=&#8221;4.19.2&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#ededed&#8221; custom_margin=&#8221;||||false|false&#8221; custom_padding=&#8221;2px||2px||true|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.20.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#bbe4ed&#8221; custom_margin=&#8221;2px|auto||auto|false|false&#8221; custom_padding=&#8221;20px|30px|0px|30px|false|true&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.19.2&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.20.4&#8243; _module_preset=&#8221;default&#8221; text_letter_spacing=&#8221;6px&#8221; custom_margin=&#8221;||16px|||&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><strong>CLINICAL TRIAL<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.19.2&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.20.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px||0px||false|false&#8221; custom_padding=&#8221;0px||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p class=\"trial\"><a href=\"https:\/\/tsclinic.org\/\" target=\"_blank\" rel=\"noopener\">Learn More &gt;<\/a><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;4.20.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#bbe4ed&#8221; custom_margin=&#8221;0px|auto|10px|auto|false|false&#8221; custom_padding=&#8221;0px|30px|30px|30px|false|true&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.19.2&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.20.4&#8243; _module_preset=&#8221;default&#8221; link_text_color=&#8221;#0C71C3&#8243; custom_margin=&#8221;||-2px|||&#8221; custom_padding=&#8221;||||false|false&#8221; global_colors_info=&#8221;{}&#8221; link_text_color__hover_enabled=&#8221;on|hover&#8221; link_text_color__hover=&#8221;#FFFFFF&#8221;]<\/p>\n<h3>Basimglurant in Children and Adolescents With TSC<\/h3>\n<p>PI: Mustafa Sahin MD, PhD\u00a0 |\u00a0 Clinical Drug Trial \u2014 <a href=\"https:\/\/clinicaltrials.gov\/ct2\/show\/NCT05059327\" target=\"_blank\" rel=\"noopener\"> NCT05059327 &gt;<\/a><br \/>\nPatient Advocacy Group Partner: <a href=\"https:\/\/www.tscalliance.org\/\" target=\"_blank\" rel=\"noopener\">TSC Alliance<\/a>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.20.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#bbe4ed&#8221; custom_margin=&#8221;30px|auto||auto|false|false&#8221; custom_padding=&#8221;20px|30px|0px|30px|false|true&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.19.2&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.20.4&#8243; _module_preset=&#8221;default&#8221; text_letter_spacing=&#8221;6px&#8221; custom_margin=&#8221;||16px|||&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><strong>CLINICAL TRIAL<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.19.2&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.20.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px||0px||false|false&#8221; custom_padding=&#8221;0px||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p class=\"trial\"><a href=\"https:\/\/tsclinic.org\/\" target=\"_blank\" rel=\"noopener\">Learn More &gt;<\/a><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;4.20.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#bbe4ed&#8221; custom_margin=&#8221;0px|auto|10px|auto|false|false&#8221; custom_padding=&#8221;0px|30px|30px|30px|false|true&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.19.2&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.20.4&#8243; _module_preset=&#8221;default&#8221; link_text_color=&#8221;#0C71C3&#8243; custom_margin=&#8221;||-2px|||&#8221; custom_padding=&#8221;||||false|false&#8221; global_colors_info=&#8221;{}&#8221; link_text_color__hover_enabled=&#8221;on|hover&#8221; link_text_color__hover=&#8221;#FFFFFF&#8221;]<\/p>\n<h3>Stopping TSC Onset and Progression 2B: Sirolimus TSC Epilepsy Prevention Study (TSC-STEPS)<\/h3>\n<p>PI: Mustafa Sahin MD, PhD\u00a0 |\u00a0 Clinical Drug Trial \u2014 <a href=\"https:\/\/clinicaltrials.gov\/ct2\/show\/NCT05104983\" target=\"_blank\" rel=\"noopener\"> NCT05104983 &gt;<\/a><br \/>\nPatient Advocacy Group Partner: <a href=\"https:\/\/www.tscalliance.org\/\" target=\"_blank\" rel=\"noopener\">TSC Alliance<\/a>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.20.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#bbe4ed&#8221; custom_margin=&#8221;30px|auto||auto|false|false&#8221; custom_padding=&#8221;20px|30px|0px|30px|false|true&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.19.2&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.20.4&#8243; _module_preset=&#8221;default&#8221; text_letter_spacing=&#8221;6px&#8221; custom_margin=&#8221;||16px|||&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><strong>CLINICAL TRIAL<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.19.2&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.20.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px||0px||false|false&#8221; custom_padding=&#8221;0px||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p class=\"trial\"><a href=\"https:\/\/tsclinic.org\/\" target=\"_blank\" rel=\"noopener\">Learn More &gt;<\/a><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;4.20.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#bbe4ed&#8221; custom_margin=&#8221;0px|auto|10px|auto|false|false&#8221; custom_padding=&#8221;0px|30px|30px|30px|false|true&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.19.2&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.20.4&#8243; _module_preset=&#8221;default&#8221; link_text_color=&#8221;#0C71C3&#8243; custom_margin=&#8221;||-2px|||&#8221; custom_padding=&#8221;||||false|false&#8221; global_colors_info=&#8221;{}&#8221; link_text_color__hover_enabled=&#8221;on|hover&#8221; link_text_color__hover=&#8221;#FFFFFF&#8221;]<\/p>\n<h3>Topical Sirolimus Ointment for Cutaneous Angiofibromas in Subjects With Tuberous Sclerosis Complex<\/h3>\n<p>PI: Mustafa Sahin MD, PhD\u00a0 |\u00a0 Clinical Drug Trial \u2014 <a href=\"https:\/\/clinicaltrials.gov\/ct2\/show\/NCT03363763\" target=\"_blank\" rel=\"noopener\"> NCT03363763 &gt;<\/a><br \/>\nPatient Advocacy Group Partner: <a href=\"https:\/\/www.tscalliance.org\/\" target=\"_blank\" rel=\"noopener\">TSC Alliance<\/a>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.20.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#bbe4ed&#8221; custom_margin=&#8221;30px|auto||auto|false|false&#8221; custom_padding=&#8221;20px|30px|0px|30px|false|true&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.19.2&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.20.4&#8243; _module_preset=&#8221;default&#8221; text_letter_spacing=&#8221;6px&#8221; custom_margin=&#8221;||16px|||&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><strong>CLINICAL TRIAL<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.19.2&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.20.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;0px||0px||false|false&#8221; custom_padding=&#8221;0px||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p class=\"trial\"><a href=\"https:\/\/tsclinic.org\/\" target=\"_blank\" rel=\"noopener\">Learn More &gt;<\/a><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;4.20.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#bbe4ed&#8221; custom_margin=&#8221;0px|auto|10px|auto|false|false&#8221; custom_padding=&#8221;0px|30px|30px|30px|false|true&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.19.2&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.20.4&#8243; _module_preset=&#8221;default&#8221; link_text_color=&#8221;#0C71C3&#8243; custom_margin=&#8221;||-2px|||&#8221; custom_padding=&#8221;||||false|false&#8221; global_colors_info=&#8221;{}&#8221; link_text_color__hover_enabled=&#8221;on|hover&#8221; link_text_color__hover=&#8221;#FFFFFF&#8221;]<\/p>\n<h3>Preventing Epilepsy Using Vigabatrin In Infants With Tuberous Sclerosis Complex<\/h3>\n<p>PI: Mustafa Sahin MD, PhD\u00a0 |\u00a0 Clinical Drug Trial \u2014 <a href=\"https:\/\/clinicaltrials.gov\/ct2\/show\/NCT02849457\" target=\"_blank\" rel=\"noopener\"> NCT02849457 &gt;<\/a><br \/>\nPatient Advocacy Group Partner: <a href=\"https:\/\/www.tscalliance.org\/\" target=\"_blank\" rel=\"noopener\">TSC Alliance<\/a>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=&#8221;1_2,1_2&#8243; 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Their vision is delivered through support of accelerating research, improving access and quality of care, providing support to families, educating, and strengthening the TSC community. 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