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We listen closely to our patients. We develop trusting relationships with families, solicit their feedback and focus on outcome measures that are meaningful to the patient community.<\/p>\n
Our Family Advisory Council<\/a> guides our priorities and contributes ongoing feedback on research design. We maintain close working relationships with patient advocacy groups<\/a>, and partner with them to convene scientific and family meetings<\/a>.<\/p>\n We align with the\u00a0\u201cFDA Patient-Focused Drug Development Guidance Series for Enhancing the Incorporation of the Patient\u2019s Voice in Medical Product Development and Regulatory Decision Making\u201d.<\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.16″ _module_preset=”default” custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_image src=”https:\/\/epitomestaging.com\/tnc\/wp-content\/uploads\/2024\/09\/424-PAT-OVIEW-0996-750-640.jpg” alt=”Clinician meeting with parent and child in sunlit room at RSZ TNC” title_text=”424-PAT-OVIEW-0996-750-640″ _builder_version=”4.27.0″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":" For PatientsOverviewThe Wisdom and Experience of Patients and Their Families Guide Us Along the WayWe listen closely to our patients. We develop trusting relationships with families, solicit their feedback and focus on outcome measures that are meaningful to the patient community. Our Family Advisory Council guides our priorities and contributes ongoing feedback on research design. […]<\/p>\n","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"class_list":["post-9187","page","type-page","status-publish","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/pages\/9187","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/comments?post=9187"}],"version-history":[{"count":66,"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/pages\/9187\/revisions"}],"predecessor-version":[{"id":12801,"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/pages\/9187\/revisions\/12801"}],"wp:attachment":[{"href":"https:\/\/epitomestaging.com\/tnc\/wp-json\/wp\/v2\/media?parent=9187"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}