For Patients

Partnerships for Fragile X Syndrome

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FRAXA Research Foundation

With the goal of finding a cure for Fragile X, FRAXA is a major contributor to the funding of biomedical research collaborating in these efforts. Equipped with an accomplished scientific advisory board, FRAXA aids in research endeavors first-hand by running scientific meetings, advising pharmaceutical companies, and providing education on college campuses, community settings, and international conferences. Outside of research, FRAXA also provides a support and resources for families.

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National Fragile X Foundation

The National Fragile X Foundation is aims to provide advocacy, education, research, and treatment for individuals with Fragile X. These goals are accomplished through a focus on community, where they engage in a vast number of educative and fundraising events, conferences, support and networking services, and research endeavors such as repository hosting and consortia promotion. 

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CLINICAL TRIAL

Clinical Study of Cannabidiol in Children and Adolescents With Fragile X Syndrome (RECONNECT)

PI: Lisa Prock, MD, MPH  |  Clinical Drug Trial — NCT04977986 >