News & Events

Center News

Molly & Robbie
September 19, 2023

2023 RARE Advocacy Summit

Members of the rare disease community from around the world will gather in San Diego this September for Global Genes’ 12th Annual RARE Advocacy Summit, one of the largest gatherings of the rare disease community.

This event is an opportunity for patient advocacy group leaders, rare disease patients, caregivers, and rare disease advocates to learn, network, and inspire each other as they interact with researchers, healthcare professionals, drug developers and other advocates during the three-day event that runs September 19 through 21 at the Sheraton San Diego Hotel & Marina on Harbor Island Drive in San Diego. The RARE Advocacy Summit (formerly known as the RARE Patient Advocacy Summit) anchors Global Genes’ Week in RARE, a series of events that will take place at the venue including the RARE Health Equity Forum, the RARE Champions of Hope Awards, the Global Advocacy Alliance Meeting, and the RARE Corporate Alliance Meeting.

 

Use this link to register, and to learn more, please visit the 2023 RARE Advocacy Summit event page or view its agenda using the links below.

REGISTER >

AGENDA >

LEARN MORE >