For Patients

Partnerships for Hereditary Spastic Paraplegia (HSP)

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Cure AP-4

Cure AP-4 aims to improve the quality of life for children impacted by AP-4 Related Hereditary Spastic Paraplegia (AP-4 HSP) by accelerating the research for cures and treatments and providing support for patient therapies critical to their well-being and rehabilitation. The ultimate goal of this organization is to study and discover a cure for all AP-4 HSP disorders (SPG47, SPG50, SPG51 and SPG52).

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Cure SPG50

The goal of Cure SPG50 is to create a cure for SPG50. Current efforts are focused on exploration of gene therapy through sponsorship of research and development with scientists, labs, and hospitals around the world.

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CLINICAL TRIAL

Registry and Natural History Study for Early Onset Hereditary Spastic Paraplegia (HSP)

PI: Darius Ebrahimi-Fakhari, MD, PhD  |  Registry and Natural History Study — NCT04712812 >
Patient Advocacy Group Partners: CureAP4, Cure SPG50