News & Events

The MED13L Foundation today announced a nearly $250,000 grant to help launch an innovative natural history study at Boston Children’s Hospital’s Rosamund Stone Zander Translational Neuroscience Center (RSZ TNC). The MED13L Syndrome Investigation of Natural History and Development (MIND Study) is a three-year research initiative designed to build on existing data and accelerate clinical trial readiness for the MED13L Syndrome community.

This commitment represents a path forward for families affected by MED13L Syndrome, a rare neurodevelopmental disorder, underscoring the MED13L Foundation and Boston Children’s shared mission to further understand and drive forward treatments for MED13L Syndrome and other rare neurodevelopmental disorders (NDDs).